The Marfan Blog

vic • to • ry

Posted by The Marfan Foundation Sep 16, 2013

blog_victory_is[vik-tuh-ree, vik-tree]

A success or superior position achieved against any opponent, opposition, difficulty.

Living with Marfan syndrome or a related disorder is not easy. There are so many challenges along the way. But there are also so many victories to be celebrated. There are big victories, such as recovery from major aortic surgery, and there are some days when just getting out of bed is a victory. And there are everyday victories as you overcome physical and social challenges associated with your condition.

We asked everyone who attended our annual conference in L.A. what victory means to each of them. Here is what they told us.




What does victory mean to you? Comment here and tell us. Or, download our Victory Is... sign, write what victory means to you, and send it to us at with “victory” in the subject of your email. Be sure to include your name and hometown. We want to share your victories with everyone here on our website and in our social media!

The Marfan Foundation works to extend the lives and improve the quality of life for everyone living with Marfan, Loeys-Dietz, VEDS, and other genetic aortic and vascular conditions.

Topics: Marfan Conference, Marfan Community, Living Successfully

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