Jasmine’s family (l-r) Mom Joanne Duffey, dad Alvin Duffey, Jasmine, sister Jawanda Duffey, and brother Jarvis Williams.
At 6’7” tall, Jasmine Duffey was one of the nation’s top basketball prospects in high school. She headed to Middle Tennessee State to pursue her dreams of college basketball, with hopes of going even further in the sport she loved. It was not to be.
Topics: Marfan Awareness, Diagnosis, Living Successfully, Quality of Life, wellness
In 2020, the world saw that there are many benefits to working from home, especially for people who live with a chronic condition, as discussed by Dominga Noe in June of last year. As we wrap up a year spent in quarantine, Destiny Lomonte, takes a look at how the move to work from home has been beneficial to the mental health of many in our community.
It’s no surprise that work and mental health are intertwined. We all know how work can cause stress and exacerbate mental health conditions, but what we have all learned this year is how it can positively affect one’s mental well-being.
Topics: Quality of Life, self care, Education, wellness, Mental Health
When I had my open-heart surgery to repair my aorta back in the summer of 2014, I did not have many questions. I wanted the process to be over as soon as possible and I trusted that my surgeon, Dr. Craig Miller, and my cardiologist, Dr. David Liang, would be able to make that happen successfully.
Topics: Marfan Community, Living Successfully, Quality of Life, Healthcare Management, Medical Management, wellness, Surgery
When I came to work for the Foundation in 2016, I was the first full-time employee with Marfan Syndrome. Originally, I worked mostly in the office, then part-time at home, and now I am fully remote as I moved to Kansas City, MO back in April. My transition coincided with the work-from-home movement that was made necessary by COVID-19. Like the Foundation, in a time of social distancing, more and more businesses are learning the value of remote jobs for their employees. While many people thrive working in the office, I have experienced first-hand how working from home has so many benefits, especially if you have a chronic condition. I believe that for those of us with chronic conditions, remote work is so much more than just a job perk. It’s a professional lifeline. How so? Here are my ten benefits to working remote with a chronic condition:
Topics: Quality of Life, Tips, self care, Work from Home, wellness
