The Marfan Blog

Volunteer Drives Successful First-Year Proclamation Project

Mar 16, 2021 by The Marfan Foundation

Amy Kipnis with her family at Hill Day in 2019.

Topics: Volunteer, Marfan Awareness, Hill Day, Education

Reflecting on Awareness

Feb 19, 2020 by Allison Pullins

Topics: Volunteer, Marfan Awareness, Children and Marfan

Sydney Lerman Pediatric Hospitality Program: Join Sydney and Carly in Giving Back

Sep 12, 2017 by The Marfan Foundation

Topics: Volunteer, Marfan Community, Living Successfully, Quality of Life

My Marfan Story: Selma Kerzman

Oct 13, 2016 by Selma Kerzman

Blake and I met in high school. When I went to his high school graduation, I met his mom and dad. I made a comment about how tall he was while his parents were so short. That’s when I learned that his dad was there with his step-mom; Blake’s own mother died when he was eight years old from complications of Marfan syndrome.

Topics: Volunteer, Living Successfully, Quality of Life

7 Simple Fundraising Tips You Can Use Today

Nov 20, 2015 by The Marfan Foundation

“Where there is unity there is always victory.” –Publilius Syrus

Our nationwide Walk for Victory program is achieving just that…victory.

Roughly 200,000 people in the United States are living with Marfan syndrome or a related connective tissue disorder.  Since 1981, The Marfan Foundation has observed, and been a part of countless victories in the Marfan syndrome and related disorders community.

Topics: Volunteer, Marfan Community, Team Victory