Amy Kipnis with her family at Hill Day in 2019.
Blake and I met in high school. When I went to his high school graduation, I met his mom and dad. I made a comment about how tall he was while his parents were so short. That’s when I learned that his dad was there with his step-mom; Blake’s own mother died when he was eight years old from complications of Marfan syndrome.
“Where there is unity there is always victory.” –Publilius Syrus
Our nationwide Walk for Victory program is achieving just that…victory.
Roughly 200,000 people in the United States are living with Marfan syndrome or a related connective tissue disorder. Since 1981, The Marfan Foundation has observed, and been a part of countless victories in the Marfan syndrome and related disorders community.