The Marfan Blog

Meet Your Gene:  An Introduction to the Marfan Gene and Current Research

Jan 10, 2017 by Roanne Weisman

Topics: Marfan Community, Diagnosis, Research, Living Successfully, Quality of Life

Meet a Marfan Researcher - Silvia Smaldone, PhD

Dec 26, 2014 by The Marfan Foundation

One of the most satisfying aspects of being part of this community is meeting the people who work hard to create a brighter future for all those living with Marfan syndrome and related disorders. Earlier this month, we had a chance to catch up with one of our senior investigators, Silvia Smaldone, PhD, from the Icahn School of Medicine at Mount Sinai, to learn more about her research. Watch the video and you'll see how her commitment and passion really shine. She says it best: "Do the right thing and you can really solve mysteries."

Topics: Research

At This Moment of Opportunity, I'm Thankful for You.

Nov 22, 2013 by Carolyn Levering

When I started my journey with The Marfan Foundation 19 years ago, we were up against so much. Far too many families were in the dark about Marfan and related disorders. And if they did get properly diagnosed, the frustrating message from doctors was that the tissues are weak and there's nothing you can do about it.

Topics: Marfan Community, Research