Creative, free-spirited, business owner, and recent college graduate, Adariel Lee, of the Bronx, NY, was diagnosed with Marfan syndrome at the age of 4 when her mother noticed she was looking down at her hands a lot. At an eye doctor appointment, they learned that the connective tissue in her eye was loose, leading her to additional medical evaluations. As a result, the diagnosis of Marfan syndrome was confirmed. Adariel is the first in her family to have the condition.
Topics: Marfan Awareness, Marfan Community, Diagnosis, Quality of Life, Medical Management, Surgery
Jasmine’s family (l-r) Mom Joanne Duffey, dad Alvin Duffey, Jasmine, sister Jawanda Duffey, and brother Jarvis Williams.
At 6’7” tall, Jasmine Duffey was one of the nation’s top basketball prospects in high school. She headed to Middle Tennessee State to pursue her dreams of college basketball, with hopes of going even further in the sport she loved. It was not to be.
Topics: Marfan Awareness, Diagnosis, Living Successfully, Quality of Life, wellness
In 2020, the world saw that there are many benefits to working from home, especially for people who live with a chronic condition, as discussed by Dominga Noe in June of last year. As we wrap up a year spent in quarantine, Destiny Lomonte, takes a look at how the move to work from home has been beneficial to the mental health of many in our community.
It’s no surprise that work and mental health are intertwined. We all know how work can cause stress and exacerbate mental health conditions, but what we have all learned this year is how it can positively affect one’s mental well-being.
Topics: Quality of Life, self care, Education, wellness, Mental Health
