The Marfan Blog

Broken Bones, But Not Broken

Feb 19, 2021 by Samantha Moliter

I was born the day before my due date and I was perfectly healthy. I was 9lbs 3oz and almost 22in long, which surprised my parents! My parents say I was the perfect baby. I slept through the night and ate like a champ, though I had issues with acid reflux.

Topics: How the Body is Affected, Marfan Awareness, Quality of Life

A Costco Shopper Saved my Life

Feb 9, 2021 by Janna Klostermann

Topics: Marfan Awareness, Quality of Life, Hill Day, Education

Stronger Together

Feb 5, 2021 by The VEDS Movement

Topics: Marfan Awareness, Education, VEDS

Three Things I’ve Learned In 25 Years Since Diagnosis

Sep 2, 2020 by Megan Price

Caption: Megan, far left, with her family.

I was diagnosed with Marfan syndrome at the age of ten during a visit to the Mayo Clinic on referral from my orthodontist. I’m now in my thirties and working as an attorney in Chicago. Over the last two and a half decades, I’ve learned a lot about navigating life with Marfan Syndrome. These are the top three things I want to share with someone newly diagnosed:

Topics: Marfan Awareness, Diagnosis, Quality of Life

Reflecting on Awareness

Feb 19, 2020 by Allison Pullins

Topics: Volunteer, Marfan Awareness, Children and Marfan