Maggie, with her mom, Jennifer, at the Foundation's Boston Walk for Victory in June.
As anyone with a rare disease will tell you, the health journey is extremely nuanced and complex. It’s difficult enough having to deal with the symptoms themselves, but managing one’s care makes it that much more challenging.
Topics: Marfan Community, Research, Tips, Healthcare Management, Medical Management
| “Oh, my goodness, how skinny you are.” |
Topics: Quality of Life, Tips, self care, Physical Activity, Healthcare Management
The Marfan Foundation announced that, starting today, it is making a new app available for free to people with Marfan and related disorders – and their families – to securely manage their medical records.
Topics: Living Successfully, Quality of Life, Healthcare Management, Medical Management
