The Marfan Blog

Power Couple Surges Through Connective Tissue Condition to Help Others

Aug 18, 2021 by Mehmet Tascioglu

Topics: Volunteer, Diagnosis, Quality of Life, doctors, Healthcare Management, Annual Conference

The Case of the Tell-Tale Toes

Apr 7, 2021 by Roanne Weisman

Topics: Quality of Life, doctors, Tips, Healthcare Management, Education, Feet

Top Five Things I Wish I Knew Before My Aortic Surgery

Dec 1, 2020 by Dominga Noe

When I had my open-heart surgery to repair my aorta back in the summer of 2014, I did not have many questions. I wanted the process to be over as soon as possible and I trusted that my surgeon, Dr. Craig Miller, and my cardiologist, Dr. David Liang, would be able to make that happen successfully.

Topics: Marfan Community, Living Successfully, Quality of Life, Healthcare Management, Medical Management, wellness, Surgery

Your Questions Answered:  Medical Geneticist and Genetic Testing

Nov 23, 2020 by Dr. Irman Forghani

If you have a connective tissue condition or are seeking an evaluation for one, you know that you need to see a cardiologist to evaluate your heart, an orthopedist to evaluate your bones and joints, and an ophthalmologist to evaluate your eyes. But what is the role of the medical geneticist?

Topics: Diagnosis, Healthcare Management, Medical Management, Genetics, Q&A

The Easiest Resolution: Taking Control of Your Health Journey in 2019

Jan 8, 2019 by The Marfan Foundation

The ball has dropped, and we rang in the New Year. Ready or not, 2019 is here.

Topics: Healthcare Management, Medical Management, Backpack Health