The Marfan Blog

The Case of the Tell-Tale Toes

Apr 7, 2021 by Roanne Weisman

Topics: Quality of Life, doctors, Tips, Healthcare Management, Education, Feet

Working from Home and Your Mental Health: The Positives

Mar 25, 2021 by Destiny Lomonte

In 2020, the world saw that there are many benefits to working from home, especially for people who live with a chronic condition, as discussed by Dominga Noe in June of last year. As we wrap up a year spent in quarantine, Destiny Lomonte, takes a look at how the move to work from home has been beneficial to the mental health of many in our community.

It’s no surprise that work and mental health are intertwined. We all know how work can cause stress and exacerbate mental health conditions, but what we have all learned this year is how it can positively affect one’s mental well-being.

Topics: Quality of Life, self care, Education, wellness, Mental Health

Volunteer Drives Successful First-Year Proclamation Project

Mar 16, 2021 by The Marfan Foundation

Amy Kipnis with her family at Hill Day in 2019.

Topics: Volunteer, Marfan Awareness, Hill Day, Education

A Costco Shopper Saved my Life

Feb 9, 2021 by Janna Klostermann

Topics: Marfan Awareness, Quality of Life, Hill Day, Education

Stronger Together

Feb 5, 2021 by The VEDS Movement

Topics: Marfan Awareness, Education, VEDS