The Marfan Blog

Power Couple Surges Through Connective Tissue Condition to Help Others

Aug 18, 2021 by Mehmet Tascioglu

Topics: Volunteer, Diagnosis, Quality of Life, doctors, Healthcare Management, Annual Conference

The Case of the Tell-Tale Toes

Apr 7, 2021 by Roanne Weisman

Topics: Quality of Life, doctors, Tips, Healthcare Management, Education, Feet

A Look Back: How Far We’ve Come in Aortic Surgery for Marfan Syndrome

Aug 12, 2020 by Lars G. Svensson, MD, PhD

My interest in Marfan syndrome started many years ago when I was in high school in South Africa. One of my classmates had Marfan. I heard him talk about it, and his words stuck in my mind throughout my medical school and surgical training in the 1970s and 1980s.

Topics: doctors, Medical Management, Education, Surgery

5 Tips for Educating your Doctor about Marfan Syndrome

Feb 6, 2018 by Wendy Molaska

female doctor.jpg

Medicine is constantly changing, and often faster than doctors can keep up. Your doctor has to periodically update her knowledge, but she also has to see hundreds of patients a week, which means she could be a little behind the times regarding new advances or the details of all illnesses and syndromes.

Topics: Diagnosis, doctors, Tips

Tips To Help You Make the Most Out Of Your Doctor Visits

Dec 11, 2017 by Jan Lynch

Topics: Quality of Life, doctors, Tips