The Marfan Blog

The Marfan Foundation

The Marfan Foundation works to extend the lives and improve the quality of life for everyone living with Marfan, Loeys-Dietz, VEDS, and other genetic aortic and vascular conditions.

Recent Posts

Losing My Sight Saved My Life

May 3, 2021 by The Marfan Foundation

Jasmine’s family (l-r) Mom Joanne Duffey, dad Alvin Duffey, Jasmine, sister Jawanda Duffey, and brother Jarvis Williams.

At 6’7” tall, Jasmine Duffey was one of the nation’s top basketball prospects in high school. She headed to Middle Tennessee State to pursue her dreams of college basketball, with hopes of going even further in the sport she loved. It was not to be.

Topics: Marfan Awareness, Diagnosis, Living Successfully, Quality of Life, wellness

Volunteer Drives Successful First-Year Proclamation Project

Mar 16, 2021 by The Marfan Foundation

Amy Kipnis with her family at Hill Day in 2019.

Topics: Volunteer, Marfan Awareness, Hill Day, Education

How It's Going

Feb 12, 2021 by The Marfan Foundation

Trendsetting Volunteers Encourage Others to #DanceForVictory

Apr 23, 2020 by The Marfan Foundation

Have you seen this?

#VictoryToday

Dec 2, 2019 by The Marfan Foundation

On December 3, the entire world will be participating in Giving Tuesday. Many people with Marfan and related conditions are supporting The Marfan Foundation because of our impact on their lives. Liam, Peter, and Katie share how the Foundation is helping them achieve #VictoryToday.

Topics: Marfan Awareness, Marfan Community, Living Successfully, Education, giving tuesday