The Marfan Blog

Aging with Marfan Syndrome: 5 Common Questions

With longer lifespans come unique concerns for older adults.

Weight Gain and Marfan Syndrome

Why can't I put on weight?

The First 6 Things You Should Do When Diagnosed with Marfan Syndrome

Is it the beginning of your Marfan journey?

Samantha Moliter

Samantha Molitor was diagnosed with Marfan syndrome when she was six years old. She was the first person in her family to be diagnosed with Marfan syndrome. She enjoys watching Disney movies and painting.

Broken Bones, But Not Broken

Feb 19, 2021 by Samantha Moliter

I was born the day before my due date and I was perfectly healthy. I was 9lbs 3oz and almost 22in long, which surprised my parents! My parents say I was the perfect baby. I slept through the night and ate like a champ, though I had issues with acid reflux.

Topics: How the Body is Affected, Marfan Awareness, Quality of Life