The Marfan Blog

Kendra DePinto

Kendra, who lives in Phoenix, AZ, was diagnosed with Marfan syndrome as a child. She is an advocate for people with chronic illnesses, chronic pain, and disability. Find more of her writing by following her Instagram @kendrawesomeness.

Recent Posts

A Journey of Acceptance

Feb 26, 2021 by Kendra DePinto

The broad goal of Marfan awareness is about seeing the complete person behind the diagnosis. My personal journey with Marfan awareness could be more accurately described as a journey towards Marfan acceptance.