The Marfan Blog

Aging with Marfan Syndrome: 5 Common Questions

With longer lifespans come unique concerns for older adults.

Weight Gain and Marfan Syndrome

Why can't I put on weight?

The First 6 Things You Should Do When Diagnosed with Marfan Syndrome

Is it the beginning of your Marfan journey?

Elijah Williams

Elijah Williams (@publicenemy1_), from Dallas, had his first Marfan-related heart surgery at age 17. Eight years later, has been through four Marfan-related heart surgeries.

Mental and Physical Recovery from Surgery

Oct 22, 2020 by Elijah Williams

This is me y’all. In all my glory. I’m scarred from the belly up. I have been conquering this thing called Marfan syndrome since birth.

At the age of 25, I’ve been under more times than I would like to count.