The Marfan Foundation’s Teen Council is a force to be reckoned with now. And they are clearly our future movers and shakers. This group of teens – who either have Marfan or a related disorder or have a sibling who is affected – is the voice of our adolescent community. Their primary focus is planning for the annual conference each summer; however, plans are underway for even greater involvement throughout the year.
Diane McKenzie
Diane McKenzie, MHA, the Program Manager at The Marfan Foundation. She can be reached at dmckenzie@marfan.org or 516-883-8712, ext. 136.