The Marfan Blog

Coley Jackson

Coley Jackson, 18, of Raleigh, NC, is a high school senior who was diagnosed with Marfan syndrome when she was two months old. She will be attending college next fall with a major in psychology, and is motivated to bring a new light to Marfan syndrome.

Recent Posts


Jan 7, 2021 by Coley Jackson

The moment in which a child is born is the most miraculous moment of opportunity. In the moment in which a human life enters the world, a million choices are laid out. The whole world is truly this tiny human’s oyster. Though for some children many of their choices are taken away and decided on by a higher power, whether this be fate, God, or simply the course of evolution.