At a time when technology infuses our lives in almost every way, it is hard to imagine that the personal computer was invented only 35 years ago. Around that same time, a group of concerned moms and physicians were rallying around a rare condition called Marfan syndrome. Their goal was learning as much as they could to spread awareness. After forming a nonprofit, known today as The Marfan Foundation, they started bringing people together for an annual conference. The first Marfan Annual Conference was held 35 years ago this year.
Beth Utz
Beth Utz is a member of The Marfan Foundation board of directors and lives in rural Ohio with her husband and six children.
Recent Posts
Invaluable Little Moments
May 10, 2019 by Beth Utz
Topics: Marfan Conference, Marfan Community, Loeys Dietz, Education, Annual Conference