A few years ago, while writing stories for a healthcare company, I found myself in conversation with Becca Weust, a young woman who had been diagnosed with Marfan syndrome as a child. Becca had faced many complications—heart surgery and brutalizing headaches, a collapsing sternum and deepest exhaustion—and she described them to me, for that was the purpose of my call. But Becca was so intelligent, funny, interesting, and warm, that I did not wish for our conversation to end.
Beth Kephart
Beth Kephart is the award-winning author of nearly 30 books for adults and young people and an award-winning teacher at the University of Pennsylvania. The Great Upending is was published on March 30, 2020, by Atheneum Books for Young Readers. More at bethkephartbooks.com
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Topics: Marfan Community, Children and Marfan