The Marfan Blog

Beth Kephart

Beth Kephart is the award-winning author of nearly 30 books for adults and young people and an award-winning teacher at the University of Pennsylvania. The Great Upending is was published on March 30, 2020, by Atheneum Books for Young Readers. More at

Recent Posts

Fierce Compassion: Becca Weust and the Stories She Tells

Apr 6, 2020 by Beth Kephart

A few years ago, while writing stories for a healthcare company, I found myself in conversation with Becca Weust, a young woman who had been diagnosed with Marfan syndrome as a child. Becca had faced many complications—heart surgery and brutalizing headaches, a collapsing sternum and deepest exhaustion—and she described them to me, for that was the purpose of my call. But Becca was so intelligent, funny, interesting, and warm, that I did not wish for our conversation to end.

Topics: Marfan Community, Children and Marfan