The Marfan Blog

Alison DenBoer

Allison DenBoer is a mother of three and she just recovered from her 3rd open heart surgery. Alison authors the blog to share her life experiences as a person living with Marfan syndrome. She hopes to help others who might feel alone in their diagnosis. She wants to inspire her daughter who also has this condition.

Recent Posts

Beautiful Gift

Jul 26, 2017 by Alison DenBoer

Hi my name is Allison. I was diagnosed with Marfan syndrome when I was 15 years old after my older brother had open heart surgery for an aortic root repair. Out of five siblings, four of us have Marfan syndrome.

Topics: Family Planning, Marfan Community, Living Successfully