Suffering in Silence No More
Jan 27, 2021 by Destiny Lomonte
Topics: Quality of Life, self care, Education, wellness, Mental Health
When I came to work for the Foundation in 2016, I was the first full-time employee with Marfan Syndrome. Originally, I worked mostly in the office, then part-time at home, and now I am fully remote as I moved to Kansas City, MO back in April. My transition coincided with the work-from-home movement that was made necessary by COVID-19. Like the Foundation, in a time of social distancing, more and more businesses are learning the value of remote jobs for their employees. While many people thrive working in the office, I have experienced first-hand how working from home has so many benefits, especially if you have a chronic condition. I believe that for those of us with chronic conditions, remote work is so much more than just a job perk. It’s a professional lifeline. How so? Here are my ten benefits to working remote with a chronic condition:
Topics: Quality of Life, Tips, self care, Work from Home, wellness
Living with the Typical Marfan Body Type
Jul 26, 2018 by Barbara Miller
“Oh, my goodness, how skinny you are.” |
Topics: Quality of Life, Tips, self care, Physical Activity, Healthcare Management
In 2018, Resolve to Practice Self-Care
Jan 8, 2018 by Jan Lynch
When we wish others a healthy and happy new year, we do not say those words lightly. In many cases, we cherish well-being for ourselves and others because we know what it’s like when we don’t have our good health.
Topics: Quality of Life, Tips, self care