The Marfan Blog

Top 10 Benefits of Remote Jobs for those with a Chronic Condition

Jun 2, 2020 by Dominga Noe

When I came to work for the Foundation in 2016, I was the first full-time employee with Marfan Syndrome. Originally, I worked mostly in the office, then part-time at home, and now I am fully remote as I moved to Kansas City, MO back in April. My transition coincided with the work-from-home movement that was made necessary by COVID-19. Like the Foundation, in a time of social distancing, more and more businesses are learning the value of remote jobs for their employees. While many people thrive working in the office, I have experienced first-hand how working from home has so many benefits, especially if you have a chronic condition. I believe that for those of us with chronic conditions, remote work is so much more than just a job perk. It’s a professional lifeline. How so?  Here are my ten benefits to working remote with a chronic condition:

Topics: Quality of Life, Tips, self care, Work from Home, wellness

Living with the Typical Marfan Body Type

Jul 26, 2018 by Barbara Miller

“Oh, my goodness, how skinny you are.”

Topics: Quality of Life, Tips, self care, Physical Activity, Healthcare Management

In 2018, Resolve to Practice Self-Care

Jan 8, 2018 by Jan Lynch

When we wish others a healthy and happy new year, we do not say those words lightly. In many cases, we cherish well-being for ourselves and others because we know what it’s like when we don’t have our good health.

Topics: Quality of Life, Tips, self care