The Marfan Blog

At This Moment of Opportunity, I'm Thankful for You.

Nov 22, 2013 by Carolyn Levering

When I started my journey with The Marfan Foundation 19 years ago, we were up against so much. Far too many families were in the dark about Marfan and related disorders. And if they did get properly diagnosed, the frustrating message from doctors was that the tissues are weak and there's nothing you can do about it.

Topics: Marfan Community, Research