The Marfan Foundation announced that, starting today, it is making a new app available for free to people with Marfan and related disorders – and their families – to securely manage their medical records.
The Marfan Foundation and Backpack Health: Frequently Asked Questions
May 17, 2018 by The Marfan Foundation
Topics: Living Successfully, Quality of Life, Healthcare Management, Medical Management
In 2018, Resolve to Practice Self-Care
Jan 8, 2018 by Jan Lynch
When we wish others a healthy and happy new year, we do not say those words lightly. In many cases, we cherish well-being for ourselves and others because we know what it’s like when we don’t have our good health.
Topics: Quality of Life, Tips, self care
My Marfan Story: Home for Christmas
Dec 20, 2017 by Auburn Ponder Anderson
Topics: Marfan Community, Diagnosis, Living Successfully, Quality of Life
Tips To Help You Make the Most Out Of Your Doctor Visits
Dec 11, 2017 by Jan Lynch
Topics: Quality of Life, doctors, Tips
Newly Diagnosed? Veterans in the Marfan Community Offer Advice
Oct 31, 2017 by The Marfan Foundation
When you or a loved one receives a diagnosis of Marfan syndrome or a related disorder, you enter a whole new world. Everyone deals with the diagnosis differently.
Topics: Marfan Community, Living Successfully, Quality of Life