The Marfan Blog

In 2018, Resolve to Practice Self-Care

Jan 8, 2018 by Jan Lynch

When we wish others a healthy and happy new year, we do not say those words lightly. In many cases, we cherish well-being for ourselves and others because we know what it’s like when we don’t have our good health.

Topics: Quality of Life, Tips, self care

My Marfan Story: Home for Christmas

Dec 20, 2017 by Auburn Ponder Anderson

Auburn's late husband, Ted, with their son, Kelly.

Topics: Marfan Community, Diagnosis, Living Successfully, Quality of Life

Tips To Help You Make the Most Out Of Your Doctor Visits

Dec 11, 2017 by Jan Lynch

Topics: Quality of Life, doctors, Tips

Newly Diagnosed? Veterans in the Marfan Community Offer Advice

Oct 31, 2017 by The Marfan Foundation

When you or a loved one receives a diagnosis of Marfan syndrome or a related disorder, you enter a whole new world. Everyone deals with the diagnosis differently.

Topics: Marfan Community, Living Successfully, Quality of Life

The Journey of  [Control] Acceptance

Oct 23, 2017 by Stephanie Randazzo

 

Topics: Quality of Life