The Marfan Blog

Living with the Typical Marfan Body Type

Jul 26, 2018 by Barbara Miller

“Oh, my goodness, how skinny you are.”

Topics: Quality of Life, Tips, self care, Physical Activity, Healthcare Management

Marfan Diagnosis: A Game Changer

Feb 20, 2018 by Rita McCrerey

A Marfan or related disorder diagnosis can be elusive for an athlete, particularly an athlete who does not display the typical cluster of characteristics.

Topics: Marfan Awareness, Marfan Community, Physical Activity