When I had my open-heart surgery to repair my aorta back in the summer of 2014, I did not have many questions. I wanted the process to be over as soon as possible and I trusted that my surgeon, Dr. Craig Miller, and my cardiologist, Dr. David Liang, would be able to make that happen successfully.
Topics: Marfan Community, Living Successfully, Quality of Life, Healthcare Management, Medical Management, wellness, Surgery
If you have a connective tissue condition or are seeking an evaluation for one, you know that you need to see a cardiologist to evaluate your heart, an orthopedist to evaluate your bones and joints, and an ophthalmologist to evaluate your eyes. But what is the role of the medical geneticist?
Topics: Diagnosis, Healthcare Management, Medical Management, Genetics, Q&A
A Look Back: How Far We’ve Come in Aortic Surgery for Marfan Syndrome
Aug 12, 2020 by Lars G. Svensson, MD, PhD
My interest in Marfan syndrome started many years ago when I was in high school in South Africa. One of my classmates had Marfan. I heard him talk about it, and his words stuck in my mind throughout my medical school and surgical training in the 1970s and 1980s.
Topics: doctors, Medical Management, Education, Surgery
Working with Your School Nurse
Aug 24, 2019 by The Marfan Foundation
For parents of a child with a connective tissue condition, worrying is a daily habit. The beginning of a new school year is especially stressful. Not only do you and your family have to get back into the routine, but you and your child have to “break in” a new teacher and sometimes a new school and a new school nurse. You want to ensure that your child will be safe at school and empowered to achieve academically – and that the school can handle any potential emergency medical situation.
Topics: Medical Management, Education, school
The Easiest Resolution: Taking Control of Your Health Journey in 2019
Jan 8, 2019 by The Marfan Foundation
The ball has dropped, and we rang in the New Year. Ready or not, 2019 is here.
Topics: Healthcare Management, Medical Management, Backpack Health