Hi my name is Allison. I was diagnosed with Marfan syndrome when I was 15 years old after my older brother had open heart surgery for an aortic root repair. Out of five siblings, four of us have Marfan syndrome.
Topics: Family Planning, Marfan Community, Living Successfully
I was recently reading a book called How to Live a Good Life by Jonathan Fields (which I highly recommend). In one of the chapters, he asks the question:
Topics: Marfan Community, Living Successfully, Quality of Life
Isaiah Austin, who was diagnosed with Marfan Syndrome in 2014, left the NBA draft to better care for himself and the effects of his condition. But yesterday, November 30, 2016, Isaiah announced that he was beginning to pursue his dream once again.
Topics: How the Body is Affected, Marfan Community, Diagnosis, Living Successfully, Quality of Life
