On December 3, the entire world will be participating in Giving Tuesday. Many people with Marfan and related conditions are supporting The Marfan Foundation because of our impact on their lives. Liam, Peter, and Katie share how the Foundation is helping them achieve #VictoryToday.
This past year I turned the big 4-0. Forty years…my gosh, it goes by fast. But if you think about it, for a handful of years it’s all about developing, playing, and watching TV. Then, you go to school.
Topics: Marfan Awareness, Diagnosis, Physical Activity
Keith has never been terribly outgoing. He’s taller than other kids and wears thick glasses. He does not like the glasses. They’ve always bothered him, but now, as he gets a little older and he gets more questions about them from kids his age, he really wishes he could just wear contacts.
Topics: Marfan Awareness, Marfan Community, Quality of Life
There are few things stronger than a mother’s intuition. The strength of this “knowing” is so deep, in fact, that it could be life-saving. That was certainly the case with Jayla and her mom, Becky.
Topics: Marfan Awareness, Marfan Community, Quality of Life
For most people, family is the first group of people we know and trust. Newborn babies know their mothers by sound. Kids instinctively look to the people they trust for social cues. In a lot of cases, this tight circle is the family into which a child is born. In other cases, family is created over time with friends and neighbors who love and support one another like any family.
Topics: Marfan Awareness, Marfan Community, Quality of Life
