The Marfan Blog

Newly Diagnosed? Veterans in the Marfan Community Offer Advice

Oct 31, 2017 by The Marfan Foundation

When you or a loved one receives a diagnosis of Marfan syndrome or a related disorder, you enter a whole new world. Everyone deals with the diagnosis differently.

Topics: Marfan Community, Living Successfully, Quality of Life

Sydney Lerman Pediatric Hospitality Program: Join Sydney and Carly in Giving Back

Sep 12, 2017 by The Marfan Foundation

Topics: Volunteer, Marfan Community, Living Successfully, Quality of Life

My Marfan Story: Keith Avitabile

Aug 14, 2017 by Keith Avitabile

Topics: Living Successfully, Quality of Life

Beautiful Gift

Jul 26, 2017 by Alison DenBoer

Hi my name is Allison. I was diagnosed with Marfan syndrome when I was 15 years old after my older brother had open heart surgery for an aortic root repair. Out of five siblings, four of us have Marfan syndrome.

Topics: Family Planning, Marfan Community, Living Successfully

Why I'm Grateful for Marfan Syndrome

Jun 2, 2017 by Latasha Doyle

I was recently reading a book called How to Live a Good Life by Jonathan Fields (which I highly recommend). In one of the chapters, he asks the question:

Topics: Marfan Community, Living Successfully, Quality of Life