The month of February is extra important to me as it marks the month of the heart. I have been living with Marfan syndrome for 30 years; however, I’ve only been diagnosed for 22 years. I try every day to share my story and knowledge about the condition. The more we speak up, the more people we can be helping. Here is my story.
Topics: Marfan Awareness, Marfan Community, Living Successfully
Topics: Marfan Community, Diagnosis, Living Successfully, Quality of Life
When you or a loved one receives a diagnosis of Marfan syndrome or a related disorder, you enter a whole new world. Everyone deals with the diagnosis differently.
Topics: Marfan Community, Living Successfully, Quality of Life
