The Marfan Blog

Flaunting Every Single Bit of My DNA - Living with Marfan Syndrome

Feb 6, 2014 by Lisa Dubin

Though I stand at a measly 5'8 for a “Marf,” as a freshman in high school, I towered over my classmates and was constantly teased for my beanpole silhouette. My flat feet made shoe shopping a nightmare, and finding 37'' inseam jeans was like looking for a needle in a haystack. I wanted to look good and feel good about myself, but I had no idea where to start.

When I got to my first Marfan conference, I met so many confident girls. They were beautiful, and they shined and flaunted every single bit of their DNA! The gender breakout session was a real eye-opener and changed the way I looked at my body. That night, when I got back to my hotel room, I pledged to NEVER beat myself down and belittle myself ever again - from now on, I was going to work it!

Topics: Marfan Conference, How the Body is Affected

Aging with Marfan Syndrome: 5 Common Questions

Sep 16, 2013 by The Marfan Foundation

People with Marfan syndrome who are diagnosed early and receive proper medical treatment can now live a lifespan equal to people in the general population. This is great news, right?

Topics: How the Body is Affected