The Marfan Blog

Advocacy in Action: My Experience Lobbying for The Marfan Foundation on Capitol Hill

Jan 11, 2019 by Sinclaire Schuetze

In June 2017, a midterm election had just occurred with the issue of pre-existing conditions and healthcare as one of the hot-button issues. Pre-existing conditions, in this context, are defined as a medical condition that a person already had before their healthcare benefits went into effect. In general, the Affordable Care Act, implemented in 2014, included that pre-existing conditions must be protected by insurance and insurance companies cannot charge a person more for having a pre-existing condition. The current debate concerns the extent to which the expenses resulting from these conditions should be covered under insurance.

Topics: Health Insurance, Hill Day, Education

To Know or Not to Know: Genetic Testing and Marfan Syndrome

Nov 28, 2017 by The Marfan Foundation

Topics: Family Planning, Research, Health Insurance, Diagnosis

Health Insurance Marketplace: New Options for Accessible, Affordable Healthcare

Oct 1, 2013 by The Marfan Foundation

Many people in our Marfan syndrome and related disorders agree: securing affordable healthcare is a victory! To address the needs of uninsured Americans, the Health Insurance Marketplace will open on October 1, 2013. The Marketplace gives uninsured Americans in all 50 states an opportunity to shop for and enroll in coverage that meets their needs and fits their budget.

Topics: Health Insurance