The Marfan Blog

A Costco Shopper Saved my Life

Feb 9, 2021 by Janna Klostermann

Topics: Marfan Awareness, Quality of Life, Hill Day, Education

Stronger Together

Feb 5, 2021 by The VEDS Movement

Topics: Marfan Awareness, Education, VEDS

Suffering in Silence No More

Jan 27, 2021 by Destiny Lomonte

Topics: Quality of Life, self care, Education, wellness, Mental Health

A Look Back: How Far We’ve Come in Aortic Surgery for Marfan Syndrome

Aug 12, 2020 by Lars G. Svensson, MD, PhD

My interest in Marfan syndrome started many years ago when I was in high school in South Africa. One of my classmates had Marfan. I heard him talk about it, and his words stuck in my mind throughout my medical school and surgical training in the 1970s and 1980s.

Topics: doctors, Medical Management, Education, Surgery

#VictoryToday

Dec 2, 2019 by The Marfan Foundation

On December 3, the entire world will be participating in Giving Tuesday. Many people with Marfan and related conditions are supporting The Marfan Foundation because of our impact on their lives. Liam, Peter, and Katie share how the Foundation is helping them achieve #VictoryToday.

Topics: Marfan Awareness, Marfan Community, Living Successfully, Education, giving tuesday