The Marfan Blog

5 Tips for Educating your Doctor about Marfan Syndrome

Feb 6, 2018 by Wendy Molaska

female doctor.jpg

Medicine is constantly changing, and often faster than doctors can keep up. Your doctor has to periodically update her knowledge, but she also has to see hundreds of patients a week, which means she could be a little behind the times regarding new advances or the details of all illnesses and syndromes.

Topics: Diagnosis, doctors, Tips

My Marfan Story: Home for Christmas

Dec 20, 2017 by Auburn Ponder Anderson

Auburn's late husband, Ted, with their son, Kelly.

Topics: Marfan Community, Diagnosis, Living Successfully, Quality of Life

To Know or Not to Know: Genetic Testing and Marfan Syndrome

Nov 28, 2017 by The Marfan Foundation

Topics: Health Insurance, Family Planning, Diagnosis, Research

Meet Your Gene:  An Introduction to the Marfan Gene and Current Research

Jan 10, 2017 by Roanne Weisman

Topics: Marfan Community, Diagnosis, Research, Living Successfully, Quality of Life

The Tale of Two Opposites: A Marfan Conundrum

Dec 1, 2016 by Latasha Doyle

Isaiah Austin, who was diagnosed with Marfan Syndrome in 2014, left the NBA draft to better care for himself and the effects of his condition. But yesterday, November 30, 2016, Isaiah announced that he was beginning to pursue his dream once again.

Topics: How the Body is Affected, Marfan Community, Diagnosis, Living Successfully, Quality of Life