The Marfan Blog

Cardiac Conditions Associated with Marfan Syndrome: Early Detection is Key

Jan 18, 2018 by Juan-Carlos Brenes

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Marfan syndrome can affect many parts of the body, but the most serious feature of the disorder is a cardiac condition called aortic dissection (tearing of the walls of the aorta) most commonly preceded by aortic enlargement. Left unchecked, this condition can be life-threatening.

In 2018, Resolve to Practice Self-Care

Jan 8, 2018 by Jan Lynch

When we wish others a healthy and happy new year, we do not say those words lightly. In many cases, we cherish well-being for ourselves and others because we know what it’s like when we don’t have our good health.

Topics: Quality of Life, Tips, self care

My Marfan Story: Home for Christmas

Dec 20, 2017 by Auburn Ponder Anderson

Auburn's late husband, Ted, with their son, Kelly.

Topics: Marfan Community, Diagnosis, Living Successfully, Quality of Life

Tips To Help You Make the Most Out Of Your Doctor Visits

Dec 11, 2017 by Jan Lynch

Topics: Quality of Life, doctors, Tips

To Know or Not to Know: Genetic Testing and Marfan Syndrome

Nov 28, 2017 by The Marfan Foundation

Topics: Health Insurance, Family Planning, Diagnosis, Research