The moment in which a child is born is the most miraculous moment of opportunity. In the moment in which a human life enters the world, a million choices are laid out. The whole world is truly this tiny human’s oyster. Though for some children many of their choices are taken away and decided on by a higher power, whether this be fate, God, or simply the course of evolution.
When I had my open-heart surgery to repair my aorta back in the summer of 2014, I did not have many questions. I wanted the process to be over as soon as possible and I trusted that my surgeon, Dr. Craig Miller, and my cardiologist, Dr. David Liang, would be able to make that happen successfully.
Topics: Marfan Community, Living Successfully, Quality of Life, Healthcare Management, Medical Management, wellness, Surgery
If you have a connective tissue condition or are seeking an evaluation for one, you know that you need to see a cardiologist to evaluate your heart, an orthopedist to evaluate your bones and joints, and an ophthalmologist to evaluate your eyes. But what is the role of the medical geneticist?
Topics: Diagnosis, Healthcare Management, Medical Management, Genetics, Q&A
This is me y’all. In all my glory. I’m scarred from the belly up. I have been conquering this thing called Marfan syndrome since birth.
At the age of 25, I’ve been under more times than I would like to count.
Topics: Quality of Life, Surgery, Mental Health
