The Marfan Blog

Stronger Together

Feb 5, 2021 by The VEDS Movement

Topics: Marfan Awareness, Education, VEDS

Healthy Life Comes From Awareness

Feb 2, 2021 by Taborski McClellen

 

Suffering in Silence No More

Jan 27, 2021 by Destiny Lomonte

Topics: Quality of Life, self care, Education, wellness, Mental Health

Choices

Jan 7, 2021 by Coley Jackson

The moment in which a child is born is the most miraculous moment of opportunity. In the moment in which a human life enters the world, a million choices are laid out. The whole world is truly this tiny human’s oyster. Though for some children many of their choices are taken away and decided on by a higher power, whether this be fate, God, or simply the course of evolution.   

Top Five Things I Wish I Knew Before My Aortic Surgery

Dec 1, 2020 by Dominga Noe

When I had my open-heart surgery to repair my aorta back in the summer of 2014, I did not have many questions. I wanted the process to be over as soon as possible and I trusted that my surgeon, Dr. Craig Miller, and my cardiologist, Dr. David Liang, would be able to make that happen successfully.

Topics: Marfan Community, Living Successfully, Quality of Life, Healthcare Management, Medical Management, wellness, Surgery