Have you heard of CRISPR gene editing technology and wondered if it could one day be used to treat or even cure Marfan syndrome? Many members of our community have asked about CRISPR so we wanted to provide an overview of this type of research and what its potential might be for treating Marfan and related disorders.
When you or a loved one receives a diagnosis of Marfan syndrome or a related disorder, you enter a whole new world. Everyone deals with the diagnosis differently.
“Where there is unity there is always victory.” –Publilius Syrus
Our nationwide Walk for Victory program is achieving just that…victory.
Roughly 200,000 people in the United States are living with Marfan syndrome or a related connective tissue disorder. Since 1981, The Marfan Foundation has observed, and been a part of countless victories in the Marfan syndrome and related disorders community.