The Marfan Blog

Suely Johns

Suely Johns, of Valencia, CA, is a member of the Los Angeles/Orange County Network Group. She is the mother of a son, Ethan, 11, who was diagnosed with Marfan syndrome at 7 months.

Recent Posts

Suely Johns - My Marfan Story

May 28, 2014 by Suely Johns

When I shared that my victory over Marfan and related disorders was "Finding a MarFriend and a MarFamily when we thought we were alone," I was remembering one of the most amazing gifts this community has given my family: my son Ethan meeting Laura.

Topics: Family Planning, Marfan Community