The Marfan Blog

Maya Brown-Zimmerman

Maya Brown-Zimmerman is a proud Marfan Mom. She was diagnosed at eight years old and started volunteering with The Marfan Foundation at 13. In the past she's written for WebMD,, and the American Heart Association. Maya works at home corralling her four young children, but in her spare time she's working to raise Marfan awareness, or catching up on This is Us. You can find her at her blog, Musings of a Marfan Mom, and on Instagram at @musings_of_a_marfan_mom.

Recent Posts

Awareness Feels Good

Feb 20, 2019 by Maya Brown-Zimmerman

I’ve been reflecting recently. My son, Julian, just turned 8. That makes him the same age that I was when I was diagnosed 25 years ago.

Twenty-five years ago, there was no Internet access for them to get answers or to find The Marfan Foundation (which, back then, was the National Marfan Foundation).