The Marfan Blog

Krystal Camire

Krystal is 33 and was diagnosed with Marfan syndrome last year. She currently lives near Seattle, WA, with her husband Tucker. They are moving to Sarasota, FL, in July and she is excited to meet a new Marfan community.

Recent Posts

Krystal Camire - My Marfan Story

May 28, 2015 by Krystal Camire

My journey with Marfan syndrome has been a long and complicated one. I was first tested when I was 19. At that time, the tests were inconclusive. I have some of the features of Marfan syndrome, such as pectus carinatum (pigeon chest), and was very tall and thin, but my measurements were borderline. I had no known family history, and I hadn't developed any serious heart problems. They told me this is not uncommon because I was still young and many people don't begin to have problems until they are older. The doctors couldn’t confirm that I had Marfan syndrome, but they also couldn’t confirm that I didn’t have it. So here I was in limbo, and limbo was where I stayed for a long time.

Topics: Marfan Conference, Marfan Community