The Marfan Blog

Kris Knauf

Kris Knauf lives in St. Louis, MO, with her husband, who has Marfan syndrome, and their three kitties. Her husband is the only one in his family with the disorder, and it seems as though every day they learn something new about life with Marfan. She is a paralegal at a fantastic firm in the city, and a member of the Foundation's Writing Group.

Recent Posts

A Workplace Issue You Probably Didn’t Anticipate

Aug 9, 2018 by Kris Knauf

It never gets easier. Each time I have to tell someone new about my husband's condition, it seems like I go around in the same circles, trying to fully explain what Marfan syndrome is and what it means for us as a couple. Each time, I feel as though I've failed to adequately put into words what exactly we're up against. And of the many uncomfortable conversations I've had to have over the years, I can honestly say that the one I still struggle with the most is the one I have to have with my boss whenever I need to update her on the current status of my husband's health.