The Marfan Blog

Joe Neil

Joe Neil lives in New York City. He and Paula ran a photo studio for over thirty years.

Recent Posts

Marfan Awareness: Paula’s Story

Jan 31, 2018 by Joe Neil


In early January 1985, Dr. Reed Pyeritz, of Johns Hopkins Hospital in Baltimore confirmed, through body measurements and imaging tests, my wife, Paula’s, very recent suspicion that she had Marfan syndrome. Paula was thirty-three years old and had been seeing doctors for a heart condition since she was nine years old.