The Marfan Blog

Dominga Noe

Dominga Noe was diagnosed with Marfan syndrome when she was nine years old. Originally from California, she now works for The Marfan Foundation in its New York headquarters as a production specialist. A long-time Foundation volunteer, Dominga is the first staff member who has Marfan.

Recent Posts

Gone But Never  Forgotten: A New Way to Think About  Grief

Apr 25, 2018 by Dominga Noe

I like to think that I’m a fairly positive person, especially when it comes to my Marfan diagnosis. It has taken a long time to get here. Not every day is a good day, but, overall, I see my Marfan diagnosis as something that benefits my life. Then there are my bad days. They are filled with joint pain, migraines, and sometimes the inability to get up out of bed. We all have our bad days physically, but we keep going because that’s our life.