The Marfan Blog

Dawn Knowles

Dawn Knowles is a member of the Foundation’s Marfan Writing Group who was diagnosed with Marfan syndrome at age 21 and survived an aortic dissection at age 28. She loves writing, going to the beach, and, most of all, spending time with her husband, Rick, adult kids, and two adorable grandsons in sunny California.

Recent Posts

Globetrotting When It’s Hard to Trot

Oct 22, 2018 by Dawn Knowles

I’ve always dreamed about exploring new places, but in my fantasy explorations, my body is strong and capable and I can do whatever I want. That, however, is not my reality.

Celebrating Our Celebrities

Feb 13, 2018 by Dawn Knowles

After Michael J. Fox was diagnosed with Parkinson’s, I casually commented that the Marfan community needed a celebrity of its own to make Marfan syndrome something everyone had heard about. I was wishing for a world where my rare disorder didn’t seem so rare—or as disordered as it felt sometimes.