The Marfan Blog

Aging with Marfan Syndrome: 5 Common Questions

With longer lifespans come unique concerns for older adults.

Weight Gain and Marfan Syndrome

Why can't I put on weight?

The First 6 Things You Should Do When Diagnosed with Marfan Syndrome

Is it the beginning of your Marfan journey?

Dawn Knowles

Dawn Knowles is a member of the Foundation’s Marfan Writing Group who was diagnosed with Marfan syndrome at age 21 and survived an aortic dissection at age 28. She loves writing, going to the beach, and, most of all, spending time with her husband, Rick, adult kids, and two adorable grandsons in sunny California.

Globetrotting When It’s Hard to Trot

Oct 22, 2018 by Dawn Knowles

I’ve always dreamed about exploring new places, but in my fantasy explorations, my body is strong and capable and I can do whatever I want. That, however, is not my reality.