The Marfan Blog

Barbara Miller

Barbara Miller had an early diagnosis of Marfan syndrome in the mid 1940s. She is the 12th of 13 children and the only one with Marfan. Because of her education in classes for the visionally impaired, she learned to touch type which sustained her throughout her career as both a consultant computer trainer and as an administrative assistant for the AFL-CIO in Washington, DC. Barbara is now retired and lives in Fort Myers, FL. She is a member of the Foundation’s Marfan Writing Group.

Recent Posts

Living with the Typical Marfan Body Type

Jul 26, 2018 by Barbara Miller

“Oh, my goodness, how skinny you are.”

Topics: Physical Activity, self care, Healthcare Management, Tips, Quality of Life