Allison DenBoer is a mother of three and she just recovered from her 3rd open heart surgery. Alison authors the blog faithhopeheart.blogspot.com to share her life experiences as a person living with Marfan syndrome. She hopes to help others who might feel alone in their diagnosis. She wants to inspire her daughter who also has this condition.
Hi my name is Allison. I was diagnosed with Marfan syndrome when I was 15 years old after my older brother had open heart surgery for an aortic root repair. Out of five siblings, four of us have Marfan syndrome.