The Marfan Blog

Beautiful Gift

Why I'm Grateful for Marfan Syndrome

“If This is the Future of the Foundation, Then Victory is Around the Corner!” Teen Council members are leaders and role models

Pregnancy and Marfan Syndrome: An Update from Melissa L. Russo, MD

Q & A with Jan Lynch, MSN, RN: Director of Help & Resource Center

Meet Your Gene:  An Introduction to the Marfan Gene and Current Research

The Tale of Two Opposites: A Marfan Conundrum

When it Feels Like Marfan is Winning

My Marfan Story: Selma Kerzman

Sinclaire’s Story from the Heart

What Fulfills You?

Linh Ngo: My Marfan Story

Improving Your Quality of Life: An Introduction to Reflexology

When People Don't Get It

Nutrition, Weight, and Quality of Life - Part 3 of 3

Nutrition, Weight, and Quality of Life - Part 2 of 3

Nutrition, Weight, and Quality of Life - Part 1 of 3

College with Loeys-Dietz syndrome

Happy Month of Love

Jamie Efurd - My Marfan Story

Living Well With Marfan Syndrome

Quality of Life: The Three Big Questions

7 Simple Fundraising Tips You Can Use Today

Carolyn Fisher - My Marfan Story

Steve Henry - My Marfan Story

From the Journal of Owen Gray: 2015 Annual Family Conference

Expressing Gratitude

Krystal Camire - My Marfan Story

Victory Is... Twenty-Five Bonus Years

Peter Donato - My Conference Story

Q & A with Isaiah Austin

Meet a Marfan Researcher - Silvia Smaldone, PhD

Adopt-A-School Victory Challenge Mini iPad Winner

Jennifer Lynch - My Marfan Story

Julie Kurnitz’s Marfan Story Gives Hope to Others

Victoria Falcone - My Marfan Story

Cindy Amdur - My Marfan Story

Suely Johns - My Marfan Story

Ben Carpenter - My Marfan Story

WORK IT!

Nicole Kramer - My Marfan Story

Embracing A Road Not Chosen Through Painting

Aortic Dissection, My Family, and the Annual Marfan Conference

Weight Gain and Marfan Syndrome - Why Can't I Put On Weight?

My Daughter's First Marfan Conference - A Decade After Diagnosis

Flaunting Every Single Bit of My DNA - Living with Marfan Syndrome

5 Things You Can Do for Marfan Awareness Month

The First 6 Things You Should Do When Diagnosed with Marfan Syndrome

What the Marfan Community Means to Us

At This Moment of Opportunity, I'm Thankful for You.

Four Questions to Ask Your Family Over the Holidays

Health Insurance Marketplace: New Options for Accessible, Affordable Healthcare

School's in Session: What Better Time to Adopt a School!

Aging with Marfan Syndrome: 5 Common Questions

vic • to • ry

Running for Those Who Can't